Today is another one of those days when my Lyme Disease seems to be winning the battle for my body and my life. I have gotten little to nothing accomplished today. I spent most of the day just resting.
The good news is, on days like this I am more likely to reach out to others in the Lyme community. So I spent some time today chatting on facebook about an upcoming rally in Washington, DC to help raise awareness of Lyme Disease, particularly the existence of CHRONIC Lyme, and the added challenges of inaccurate testing, poorly trained doctors, and insurance companies that insist on denying treatments that actually work.
My big contribution, I thought of a hashtag to use for the event. So, if you follow me on twitter, don't be surprised if you see something between now and May 25th about #LymeMayDay. I will be there along with my mother (also a chronic Lymie) and my son (who got Lyme from me in utero... which then caused him to develop an Autism Spectrum disorder).
Today I am praying for proper treatment and a cure, not just for me, but for the thousands of others who suffer from this disease each and every day.
The good news is, on days like this I am more likely to reach out to others in the Lyme community. So I spent some time today chatting on facebook about an upcoming rally in Washington, DC to help raise awareness of Lyme Disease, particularly the existence of CHRONIC Lyme, and the added challenges of inaccurate testing, poorly trained doctors, and insurance companies that insist on denying treatments that actually work.
My big contribution, I thought of a hashtag to use for the event. So, if you follow me on twitter, don't be surprised if you see something between now and May 25th about #LymeMayDay. I will be there along with my mother (also a chronic Lymie) and my son (who got Lyme from me in utero... which then caused him to develop an Autism Spectrum disorder).
Today I am praying for proper treatment and a cure, not just for me, but for the thousands of others who suffer from this disease each and every day.
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